Myasthenia Gravis
So it’s been quite the week already and it’s only Wednesday. I am sure there is both work and personal drama still to come. Dylan has some major Drama that I wanted to document here.
Last week Dylan seemed to be having more difficulty on our walks. I thought it was just soreness related to his recent injuries. He’s been calm and quiet and Sunday I even had trouble getting him to hop out the car. That’s something Dylan is always excited to do when we arrive at exciting places. Something hasn’t been quite right. Monday he has an Acu-Massage from Anita. She said his Sciatic Nerve was pinched again and I was hoping that he was on his way to feeling better.
Paul has been helping with thedogs this week (yes he is so great!) and I have been working OT. He took them out for a walk yesterday and after about 20 minutes Dylan started stumbling and acting like he was drunk. He recovered and it happened again. This ve ry smart man was brilliant enough to catch the repeated episodes on video:
And One More:
Dylan recovered after they made it back to the house and has not had any episodes left. I have been freaked out about it ever since. I took him into the vet today and thanks to the videos they have an idea of what it might be.
Myasthenia Gravis
It was described to me by two vets as a degenerative neurological condition. The paperwork they gave me calls it an auto immune disease that attacks the nervous system. I guess the simple way of explaining it is that he overuses the neuron synapses in his brain until they cannot function. So often episodes are induced by exercise when he is using his muscles over and over and over again. Eventually, the synapses give out and can’t work anymore so he loses control of his muscles. It’s common for it to start in the back legs and as time goes by become more frequent and effect more and more of his body.
Myasthenia Gravis can also lead to Megaesophagus. My friend Cynthia has a dog with this and writes about it on her blog from time to time. There can also be other complications which are common with any disease that attacks the immune system.
We were lucky enough to get three opinions today. They all agree that this is likely the right diagnosis. Testing is expensive but we underwent the first steps today. A full blood panel to rule out other problems (Dylan was due for one anyway) and an antibody test that tests for the antibodies that are attacking the nervous system. We may need to do one more test that consists of an injection immediately following an episode. If we see this stumbling drunk behavior we are to rush to ER and ask for the test. Right now the goal is to prevent him from having more episodes until the blood tests come back on Friday. If they determine the injection test is needed we may stress test him in the vets office on a treadmill. I’d prefer to avoid this step since I really don’t want to put Dylan through anything more than he has already been through this week.
There are treatment options to slow the progression. I’ve contacted my holistic vet and may end up seeing her Friday for her opinion. I want to get the blood tests back first but she is leaving town for a month so we sent her the videos and will wait to see what she requests.
I’ve got some conflicting information about the disease. The vets today made it sound like he will degenerate throughout the rest of his life. The literature states that 89% go into remission in an average of about 6 months and in no more than 18 months. That’s pretty good odds. However, those that do not go into remission do get cancer withing 3 years. I hate thinking about that 11 percent. I am going to ask for more clarification on Friday when I consult with the vets.
The vets at K-9 Rehab have been fantastic and helpful today. I am happy with my decision to take him there today. They were all so willing to work together to discuss his issues since they aren’t the most common.
Paul keeps reminding me to think about the positives. I am trying hard but still not holding myself together very well. I’ve been an emotional wreck since yesterday and I am sure it’s not going away overnight but I am so grateful to have such great friends standing by me. I really appreciate the support.
It’s been a hectic day today. I just realized haven’t even blogged about our foster. Another day another post I guess. I am so ready for bed. My new 6 AM Shift will be here in a flash…
Oh no… thanks for writing it all out. Lucy doesn’t have Myasthenia Gravis but it was one of the possibilities causing her Megaesophagus.
My thoughts are with you and Dyl…
Hey, I have Myesthenia Gravis. I don’t know where you got your information but let me correct a few things. 1, When Dylan has an episode like the one in the videos just grab him and let it take a nap-You see episodes of MG come when you do stuff to aggravate the condition. For example, exercising will trigger an attack so when that happens you go home and rest. If you take regular naps, or rest while doing moderate activities you’ll be able to last a bit more while walking or exercising. If Dylan started having symptoms after walking for an hour then that;s its limit time to exercise. So, please try to avoid the episodes. Walk with Dylan for 20- 25 minutes (your point of no return sort of speak) then at that point start your walk home. When you get home he needs to rest. a nap will be best.
If you avoid the attacks then the condition seems to improve over time. (however, this is not always the case) Medicine helps but I get better results if I only take my meds when I have worked to hard or aggravated the condition in some other way.
There are also medicines and even foods that really aggravate Myasthenia Gravis some are common, some change from person to person. (and Imagine how hard it would be to apply all of this to a dog) The vet can give you a list of medicines that help with the condition. (please, do not over use these medicines, they will make you even worse than the MG. For example, I take Mestinon. I am supposed to take it 3 times a day. If I do that then I feel more energetic but I get horrendous diarrhea. No joke… Take Mestinon and you’ll be going to the bathroom almost every half hour with diarrhea. You eat anything or drink the diarrhea gets worse. That’s why I limit my intake of Mestinon. All the drugs for MG seems to have problems associated with it so you have to really really managed them. and I hate to tell you but Doctors and Neurologists area clueless as to most aspects of how to manage MG. They think the pills and treatments should be enough. But the aren’t… I can’t believe a Vet will know better.
I can bore you for hours about all the needles with electricity that they used on me several times to test and verify the diagnosis. (I wasn’t lucky. My blood tests never show any markers of the condition so they tortured me many times just to satisfy themselves that I wasn’t faking it)
Any how, sorry about the long post. oh, and I never hear anything about anybody developing cancer. You see some this thing has many facets. Some MG people develop symptoms because the thymus gland is not working properly or they have a tumor (sometimes is cancer, sometimes it isn’t). However, in my case the thymus is not the problem. In any case, if you have any questions please email me and I’ll give you my best guess. (MG varies tremendously from Human to human…dog… wow
Good Luck with Dylan.
I hope my info helps you out a bit.
Please check out my Christmas Light Show at http://www.eugenechristmaslights.com
and yes, every year I put this show in front of my house while working around my myasthenia problems.